A blog about Kyle and Rebecca's family
Dinah’s first understandable phrase is……..”want one”. She babbles in her own language quite a lot and is learning to ask for specific things by what they are called. And as Kyle was passing out frozen gogurts to the kids Dinah was standing there saying “want one, want one”
So cute
They finally removed the feeding tube from Chloe’s face. So that’s one less thing dangling off of her to have to worry about keeping tangle free. Isn’t she so cute:
Chloe has been doing much better than she did previously. She still has the IV in her arm, and still has the feeding tube in her nose, but we’ve been told the doctor approved removing the feeding tube if she eats regularly. Also, they have said the IV will be replaced with a PICC since the antibiotics are so abrasive on her vein, and that way it will provide the antibiotics directly into her blood stream through her heart. Personally, that sounds rather scary, but we just have to assume they know what they are doing.
She’s also been nursing and feeding from a bottle more regularly. Rebecca has been released and is now at home, and she and the nurses have decided they can alternate feedings every three hours (so Rebecca nurses once every 6 hours, and they use formula for the other 3-hour feedings). Rebecca can then just pump during the times she’s at home, which gives me a chance to go in and help as well. I must say, waking up for the 2am feeding was not fun (the nurse said to just let them handle it since they were already there), but it was nice to spend some quiet early morning time with my little girl. I just held her until she fell back asleep and then put her back down.
One thing more that Rebecca was told is if they can do the PICC, they might be able to release her to our care if they wean her off the IV fluids, and we’ll just be able to give her the antibiotics at home. So that would be great, although the idea of having her at home with a little tube leading right to her heart is a bit concerning.
Happy Father’s day Kyle. I’m so sad that I didn’t get to spend much of the day with you. But I love you, and I wish I could be home right now, and I know you know that.
Here’s my hubby with the five little reasons that make him a dad. 😉 The nurse in the nursery was nice enough to let us have all the kids in the nursery for this picture. Normally there are only 3 people allowed in for a baby at a time, and Dinah is too young to be in there at all. But they let us break the rule for just a couple of minutes while we snapped some pictures for Father’s day.
Well today has been really a miserable day. I know things could be worse than they are, but they certainly could be better too. The pediatrician on call today came to my room to tell me that Chloe’s white blood cell count has actually increased from the last time they counted. Which means that they will need to continue the IV antibiotics for the next week, and Chloe won’t be coming home with us tomorrow. 🙁 I am SO upset. I’ve spent most of the day just crying. He said they also needed to put her on a feeding tube, to be able to get some food into her tummy so she can learn what it feels like to be hungry. Right now she’s just been on IV fluids and is so lethargic, and has no concept of hunger that it’s not really working to go in there and nurse her. I keep trying, and I tickle her and blow on her, and unwrap her and touch her, and talk to her, and the nurse helps with rubbing Chloe down with her cold hands to try to wake her up and we are just not having any success with it. And they have decided to put her on previcid (for reflux) since she keeps coughing yucky stuff up, and she chokes on it most of the time. The only ‘good’ news I have to report is that she has been off the oxygen since yesterday afternoon, and she is breathing just fine now.
